What is Fragile X Syndrome?
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Personal Story
Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges, and various physical characteristics. As many as 1 in 130 women are carriers of the Fragile X mutation. Estimates vary and studies are ongoing.
Fragile X Syndrome is the leading known genetic cause of autism. Among the total population of those with autism, approximately 2-6% are diagnosed with Fragile X Syndrome as the underlying genetic cause. Approximately two thirds of all children with Fragile X Syndrome also have autism, an autism spectrum disorder or behaviors associated with autism.
Over one-million Americans carry a Fragile X mutation or are at risk for developing, a Fragile X-associated Disorder, including FXTAS (Fragile X-Associated Tremor Ataxis Syndrome) and FXPOI (Fragile X-Associated Primary Ovarian Insufficiency).
Over 100,000 Americans have Fragile X Syndrome, making FXS the leading cause of inherited intellectual disability.
Read Becky Cox Fragile X Story.
July 14th - 17th, 2022
18th NFXF International Fragile X Conference
August 13th, 2022
13th TXFX Splash Day
September 18th, 2022
Fragile X Parent Meeting
October 22nd, 2022
14th TXFX Fall Festival
Our mission is to provide resources and guidance to families affected by Fragile X Syndrome. Increase awareness of Fragile X Syndrome in the community. Organize family activities, support meetings and educational programs. Promote research and treatment of Fragile X.
501(c)3 Non-Profit Organization
The Texas Fragile X Association is a 501(c)3 non-profit charitable and educational organization serving the Dallas Fort Worth Metroplex.
Upcoming Events
Read Lynda Rogers personal journey with Fragile X Syndrome.