Personal Story


What is Fragile X Syndrome?


Read about Lynda Rogers personal journey with Fragile X Syndrome.

Fragile X syndrome (FXS) is a genetic condition that causes intellectual disability, behavioral and learning challenges, and various physical characteristics. As many as 1 in 130 women are carriers of the Fragile X mutation. Estimates vary and studies are ongoing.
 
Fragile X Syndrome is the leading known genetic cause of autism. Among the total population of those with autism, approximately 2-6% are diagnosed with Fragile X Syndrome as the underlying genetic cause. Approximately two thirds of all children with Fragile X Syndrome also have autism, an autism spectrum disorder or behaviors associated with autism.
 
Over one-million Americans carry a Fragile X mutation or are at risk for developing, a Fragile X-associated Disorder, including FXTAS (Fragile X-Associated Tremor Ataxis Syndrome) and FXPOI (Fragile X-Associated Primary Ovarian Insufficiency).
 
Over 100,000 Americans have Fragile X Syndrome, making FXS the leading cause of inherited intellectual disability.

501(c)3 Non-Profit


Organization


The Texas Fragile X Association is a 501(c)3 non-profit charitable and educational organization serving the Dallas Fort Worth Metroplex.

February 27th

Symposium w/ Dr. Patricia Evans/FX Clinic

March 26th

March for Respect 

April 30th

4th Annual TXFX Awareness Walk

July 20th - 24th

15th International Fragile X Conference

July 31st

11th Annual TXFX Splash Day

October 29th

11 Annual TXFX Fall Festival 

Upcoming Events

Donations Welcomed!

Our mission is to provide resources and guidance to families affected by Fragile X Syndrome. Increase awareness of Fragile X Syndrome in the community. Organize family activities, support meetings and educational programs. Promote research and treatment of Fragile X.

Our Mission